At a glance
Long-term health outcomes of people living with spina bifida is a federal competitive grant from Centers for Disease Control - NCBDDD for the science & technology sector. Funding is $100K–$300K. Eligible applicants: Special district governments; Public and State controlled institutions of higher education; Private institutions of higher education; City or township governments; Independent school districts; Nonprofits that do not hav. The application deadline is October 26, 2026. Apply via the official listing at www.grants.gov.
- Amount
- $100K–$300K
- Deadline
- Oct 26, 2026
- Type
- Competitive
- Status
- Expired
About this program
The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB
Who can apply
Special district governments; Public and State controlled institutions of higher education; Private institutions of higher education; City or township governments; Independent school districts; Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education; County governments; Small businesses; Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education; For profit organizations other than small businesses; Native American tribal governments (Federally recognized); State governments
How to apply
Apply through Grants.gov using funding opportunity number CDC-RFA-DD-26-0222. Register your organization (SAM.gov + Grants.gov) before the deadline, then submit the application package listed in the official notice.
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